Saudi-Lebanese style star Alanoud Badr raises awareness for international Rare Disease Day

Alanoud Badr is taking part in an event organized by High Hopes Dubai. (@fozaza)
Updated 27 February 2018
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Saudi-Lebanese style star Alanoud Badr raises awareness for international Rare Disease Day

DUBAI: Saudi-Lebanese fashion blogger Alanoud Badr is calling for support on international Rare Disease Day, which lands on Feb. 28.
The style-savvy social media star is calling on her more than 550,000 Instagram followers to join a Feb. 28 walk-a-thon in Dubai to raise awareness for rare diseases, encourage diagnosis and improve access to treatment and medical representation for individuals with rare diseases and their families.
The walk was organized by High Hopes Dubai, a pediatric therapy center for children with special needs.
“In line with the Year of Zayed and Dubai's vision of tolerance and inclusion, we are thrilled to be heading a united walk in Dubai,” the center posted on its social media pages.
“What a day. One great event and collaboration and another fantastic cause ahead! Walking toward the week with so much hope, faith and love,” Badr posted on her Instagram account, @fozaza.
“I will be proudly walking for
rare disease day with
@highhopesdubai… alongside all those amazing warrior moms and angelic kids with rare genetic disorders who are incredible human beings fighting to live a close to normal life… This walk is open to the public and is part of an international movement all over the world. Be part of it,” she added.
The event in Dubai is just one of 400 events in 80 countries organized as part of the 11th international Rare Disease Day.
Based in Dubai, Badr is a regular fixture on the UAE’s fashion scene and even has her own brand called Lady Fozaza, which she launched in 2011.


Blame it on Bieber: Iceland canyon too popular with visitors

Updated 19 May 2019
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Blame it on Bieber: Iceland canyon too popular with visitors

  • Iceland received around 2.3 million tourists last year
  • The influx of visitors can disturb the natural landscapes in the country

FJADRÁRGLJÚFUR, Iceland: A large sign warns motorists that Iceland’s Fjadrárgljúfur canyon is closed to visitors but drivers keep on coming down the narrow gravel road. A ranger at a roadblock has to explain why no one can pass: The vulnerable landscape cannot sustain more visitors.
Blame Justin Bieber, the Canadian pop star with a worldwide reach.
Bieber’s magical music video “I’ll Show You” was filmed at the canyon and seen by millions, creating overwhelming demand for the once-pristine spot. For a chance to follow in Bieber’s footsteps, his fans are not letting a few fences, signs or park rangers keep them away.

Eager visitors try to sweet-talk ranger Hanna Jóhannsdóttir into opening the gate. Some offer bribes. They should know in advance it’s not going to work.
“Food from people’s home country is the most common bribery,” said Jóhannsdóttir, who recently turned down a free trip to Dubai in exchange for looking the other way at trespassers.
The Bieber-inspired influx is one part of a larger challenge for Iceland — the North Atlantic island nation may be too spectacular and too popular for its own good.
Last year 2.3 million tourists visited Iceland, compared with just 600,000 eight years ago. The 20% annual uptick in visitors has been out of proportion with infrastructure that is needed to protect Iceland’s volcanic landscape, where soil forms slowly and erodes quickly.
Environment Minister Gudmundur Ingi Gudbrandsson said it is “a bit too simplistic to blame the entire situation on Justin Bieber” but urged famous, influential visitors to consider the consequences of their actions.
“Rash behavior by one famous person can dramatically impact an entire area if the mass follows,” he told The Associated Press.
Bieber has the third-largest Twitter account at over 105 million followers, after Katy Perry and Barack Obama, according to friendorfollow.com — and he has over 112 million followers on Instagram.
In the viral video — watched over 440 million times on YouTube since 2015 — Bieber stomped on mossy vegetation, dangled his feet over a cliff and bathed in the freezing river underneath the sheer walls of the canyon.
“In Justin Bieber’s defense, the canyon did not, at the time he visited, have rope fences and designated paths to show what was allowed and what not,” Gudbrandsson said.
Over 1 million people have visited the area since the release of the video, the Environment Agency of Iceland estimates, leaving deep scars on its vegetation. After remaining closed for all but five weeks this year, it is expected to reopen again this summer only if weather conditions are dry.
Icelanders are reluctant to fault the pop star, who enjoys enormous support on the island. About 12% of Iceland’s entire population — 38,000 people — attended his two concerts in Reykjavík, the capital, a year after the video was released.
Locals underestimated the canyon’s potential as a major attraction because it’s relatively small compared to those formed by the country’s powerful glacier rivers. But unlike others, it is easily accessed and requires less than a kilometer of trekking.
The selfies and drone images have stopped — for now — but more exposure is coming. The latest season of the popular HBO drama “Game of Thrones” features scenes filmed at the canyon. The nearby Skógar waterfall and the Svínafells glacier are also backdrops in the fictional Thrones world of warriors and dragons.
Inga Palsdottir, director of the national tourism agency Visit Iceland, said a single film shot or a viral photograph has often put overlooked places on the map.
The most extreme example, she said, is the Douglas DC-3 US Navy plane that crashed on the black sand beach at Sólheimasandur in 1973. The seven Americans on board all survived but the plane wreck was never removed.
“Then someone decided to dance on it and now it’s one of the most popular places in the country,” said Palsdottir.
On a foggy Wednesday morning, ranger Jóhannsdóttir observed fresh footprints on the muddy pathway to the Fjadrárgljúfur canyon, indicating that someone had jumped the fence overnight.
She predicted that more people would trespass that afternoon when she left the roadblock to give a presentation at a community center. She was right. Less than 30 minutes passed before tourists began ignoring the fences and signs.
“We came because of Justin Timberlake,” said Mikhail Samarin, a tourist from Russia, traveling with Nadia Kazachenok and Elena Malteseva, who were quick to correct the artist’s last name to Bieber.
“It was so amazing,” said Malteseva about the Bieber video. “After that, we decided it was necessary to visit this place.”
The three took turns posing for a photograph, standing at the edge of an Icelandic cliff.